Our guest is Patti, the mother of a child living with Spina Bifida. Patti shares her family's story of caregiving for a child with Spina Bifida, the transition from pediatric to adult urology and her work in the Spina Bifida community.
Short on time? Use the below timestamps to jump to any section:
00:42 - Introduction
01:03- What is Spina Bifida?
01:38 - Being a parent and caregiver
05:10 - Pediatric urology experience for Patti and her family
08:00 - How can other caregivers prepare for their pediatric urology appointments?
11:57 - When to start thinking about moving from pediatric to adult urology?
15:26 - What are some important questions to ask about moving from pediatric to adult urology?
20:04 - Patti's work in the Spina Bifida community
25:21 - Final thoughts and advice for parents and caregivers
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June 1, 2023
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